“Progress slow, but consistent.” That is how Tracy, Ella’s OT (occupational therapist), reports on her sessions. It is true. Not much progress in gross motor skills. But, today, Ella had a very good day. Evette, her nanny was with her and must have spent hours singing and talking to her, in French yet! Evette reports how responsive Ella is and how joyful she is. Okay. We are happy to hear that. After writing down Ella’s waking times yesterday and watching today, she seems to have come out of the over-sleepiness. Maybe she was under the weather, as Etan and I were, over the weekend. She had therapy today and yesterday and was interactive and cooperative. While siting in her makeshift therapeutic chair today at dinner with us she was so funny. She just started laughing. First it seemed to be because Gal came to the table. Then it was the clanking of a pot lid. Then it was just because….well by that time we were all laughing. But Ella’s laughs are the funniest thing. Really cute. Kind of a cross between repetitive noisy exhaling and a big smile. She always looks like she knows something that the rest of us just don’t get. Oh well — maybe she does.
Tomorrow we have a meeting with the neurosurgeon who will probably perform the hemispherectomy — Dr. Black. That is, we hope we have an appointment with him. You never know with these guys.